My heart, soul, and very being are so tired of going through this with my little man. Though we are veterans, though we are close to the end, this is the steepest part of the hike. The part where exhaustion sets in, the part where you wonder if you were crazy to climb this mountain in the first place. Sure, the view is breathtaking to see how far we have come... but it is not quite the money shot at the top of the peak. This road is narrowing and the friends who traveled with us before are even at the top of the peak enjoying the view...yet we are not. We are still climbing, braced with what we need for every expected pitfall. There is one thing I know for sure. Some things are better with time...wine, cheese, Tom Selleck...but the process of tissue expansion is not one of them.
Two fills under our belt and we have had to stop until we can get this illness under control. We go to lengths to prevent this. Birthday parties at Chuck E Cheese, after school events, bounce houses are all a normal 5 year old's luxuries that Zac has to give up in this 12 week period. This year we have a new obstacle....kindergarten. Zac loves school and his teachers do everything they can to keep him away from illness and when it does strike, I know he will be missing out on one more thing he loves.
Please pray for my little guy's health. He has the most amazing spirit and joyful heart. Please pray that God gives us the strength we need to keep the pace, stay the course, and appreciate our own journey.
Hi my daughter has a btn, shes only 6 months, we probably wont do removal as we live in northern ireland and the uk doesnt tend to do removal. Its so good hearing about your son, i loved watching the clip of him getting his expanders, even seeing how he acts, hes just a normal boy with a few spots, he is really just beautiful xx
ReplyDeleteMy daughters nevus is nevus spilus, which as far as i know is the same as the speckled nevus, its very light in colour like your sons, her satellites would be v similar colour too. Im on nevus outreach on facebook, maybe your on there, might spk to you again. Thank you for sharing xxx
Hi my daughter has a btn, shes only 6 months, we probably wont do removal as we live in northern ireland and the uk doesnt tend to do removal. Its so good hearing about your son, i loved watching the clip of him getting his expanders, even seeing how he acts, hes just a normal boy with a few spots, he is really just beautiful xx
ReplyDeleteMy daughters nevus is nevus spilus, which as far as i know is the same as the speckled nevus, its very light in colour like your sons, her satellites would be v similar colour too. Im on nevus outreach on facebook, maybe your on there, might spk to you again. Thank you for sharing xxx