Zachary James

Zachary James

Wednesday, February 29, 2012

Houston...We Have A Problem!

Friends, there is unfortunately something wrong with our PayPal account for the cookbooks. I will let you know when it is back up. Until then, if you would like to pay by check, please email me at and let me know how many you want and I will get you a total. Thank you for your support. I hope that this will not deter you from ordering and supporting Zac!

Saturday, February 25, 2012

Now We're Cookin'

I am so happy to announce the newest edition to our family!  Zac's Treats & Zesty Eats....our collaborative cookbook to support the efforts to remove Zac's Giant Congenital Melanocytic Nevus.  As most of you may know...last January we started on quite a journey.  We traveled to Chicago for four separate surgeries in efforts to remove Zac's nevus with a series of tissue expansion.  Click here to start from the beginning of our journey and to learn about the process.  With the expenses we have incurred thus far - combined with what we face this year alone, we created this cookbook in an effort to help Zac get the care he needs.  I hope that you will consider purchasing a cookbook (or two...or three...) and that you will spread the word to your friends and family.  Not only does the purchase support a fantastic (and very adorable) cause, but spreading the word is also a great way to educate others on this rare condition.  Cookbooks are $20 each plus $4 shipping & handling.  If you live locally, you can email me at and I will be happy to deliver yours to you.  Checks can be mailed to 1335 W. Medinah Ct. | Phoenix, AZ  85086 or you can easily use the PayPal button to the left.  Thank you for your support and prayers - it has meant the world to us.  Please pray for us as we continue our journey next Tuesday when we return to Chicago for Zac's next surgery on Thursday, March 1st.

Friday, February 3, 2012

A Hairy Situation

Here we are again...T-minus 4 weeks until we head back to Chicago for our next round of expansion.  Ugh.  It seems like we just got back from the Windy City and although it was beautiful with the orange trees and gentle weather - stepping into March weather...I am not looking forward to.  Especially since Punxsatawney Phil went and saw his shadow.  For Arizona that's just fine....don't threaten me with 6 more weeks of 70 degree weather LOL.  But for Chicago...ugh...better bundle up.  Ok, I admit's not really the weather I'm dreading...the grey cloud that hangs over me has nothing to do with snow - it has everything to do with an angelic little blue-eyed sweetie who is so lovable he can break my heart with just one smile.

This will be the third round of expansion so I now know what to expect...right?  This IS true... if what to expect is to expect the unexpected.  I have enough good nevus mommy friends to know that every round is different.  Just when you think you have it mastered...a complication that you have never experienced comes right along and puts you in a tail spin - flipped ports, strange bacterial infections, stitches that just won't heal, tissue expanders that leak...yep.  Although, there's a world of variables that can go wrong - I believe that the outcome is SO RIGHT!  So...cross your fingers, here we go again...

I was giving Zac a bath last night - because I see Zac all the time, I think I am blind to some of the changes that happen.  He has gotten so many spots since he was born that I definitely don't count them anymore, I don't even really think I see them until someone starts to stare.  But, I happened to notice that Zac's back nevus has gotten SO HAIRY!!  I mean like...need a good mow hairy!  So, I gave him a good trim...but not before I snapped a picture for you.

Not sure if the picture actually does it justice but if you look closely, you can see a lot of hair, especially up on the right shoulder.  Just one more reason that keeps me going forward on our journey of removing his giant congenital melanocytic nevus.  Zac has had a lot of itching these past four months and a lot of severe dryness. Though I cover him in Aquaphor daily, it doesn't seem to totally get rid of the dryness, scales and flakes.  I have had to switch to a prescription hydrocortisone cream a couple times a week.  I hate to use something that's not over-the-counter, but the itching is simply too much.  Hopefully we will be able to get two tissue expanders in this time.  I am hoping for one in the upper right shoulder and one on the left back to continue what we've done on the last two rounds.  It's double the work...but double the reward.  

There is one silver lining this round.  This round will only be 10 weeks.  This is good and bad....good because at the 11 week mark, Zac tends to get really uncomfortable; bad because...well, every fill counts when you only have 10 weeks!  That means it is more important than ever to keep Zac healthy this round, ensuring that we are able to do EVERY fill to it's maximum amount!  Here we grow again!

Our cookbook, Zac's Treats & Zesty Eats is under production and on its way!!  Pre-order a cookbook today and help Zac get out of this hairy situation!

Support Zac in his journey to remove his GCMN and reduce his risk of melanoma!  If you need multiple cookbooks or more information, you can email me at