Zachary James

Zachary James

Sunday, October 18, 2015

Wine, Tom Selleck, & Expansion


Four weeks into the 8th round of expansion and Groundhog Day is upon us...  The slight cough, the fever, the extra hugs for mommy.  The sound of light sleepless moaning and coughing coming from down the hall as I sit here and put my feelings onto virtual paper.  Worse than your common cold, I know it well... it is most likely an infection or perhaps a virus waiting to turn into one.  I am exhausted.  Not just physically.  I know tomorrow we will be placed on precautionary antibiotics that we most likely will endure for the next 8 weeks.

My heart, soul, and very being are so tired of going through this with my little man. Though we are veterans, though we are close to the end, this is the steepest part of the hike.  The part where exhaustion sets in, the part where you wonder if you were crazy to climb this mountain in the first place.  Sure, the view is breathtaking to see how far we have come... but it is not quite the money shot at the top of the peak. This road is narrowing and the friends who traveled with us before are even at the top of the peak enjoying the view...yet we are not.  We are still climbing, braced with what we need for every expected pitfall.  There is one thing I know for sure.  Some things are better with time...wine, cheese, Tom Selleck...but the process of tissue expansion is not one of them.

Two fills under our belt and we have had to stop until we can get this illness under control.  We go to lengths to prevent this.  Birthday parties at Chuck E Cheese, after school events, bounce houses are all a normal 5 year old's luxuries that Zac has to give up in this 12 week period.  This year we have a new obstacle....kindergarten.  Zac loves school and his teachers do everything they can to keep him away from illness and when it does strike, I know he will be missing out on one more thing he loves.

Please pray for my little guy's health.  He has the most amazing spirit and joyful heart.  Please pray that God gives us the strength we need to keep the pace, stay the course, and appreciate our own journey.

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I am adding a private link to Zac's last fill for anyone who would like to take a peek of what it is like to fill his tissue expander.  This round, Zac has three new friends - Thor, Thing, and Scooby Doo, names for his new bubbles.  Take a look at this amazing kiddo...  A Weekly Fill With Captain Happy

3 comments:

  1. Hi my daughter has a btn, shes only 6 months, we probably wont do removal as we live in northern ireland and the uk doesnt tend to do removal. Its so good hearing about your son, i loved watching the clip of him getting his expanders, even seeing how he acts, hes just a normal boy with a few spots, he is really just beautiful xx
    My daughters nevus is nevus spilus, which as far as i know is the same as the speckled nevus, its very light in colour like your sons, her satellites would be v similar colour too. Im on nevus outreach on facebook, maybe your on there, might spk to you again. Thank you for sharing xxx

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  2. Hi my daughter has a btn, shes only 6 months, we probably wont do removal as we live in northern ireland and the uk doesnt tend to do removal. Its so good hearing about your son, i loved watching the clip of him getting his expanders, even seeing how he acts, hes just a normal boy with a few spots, he is really just beautiful xx
    My daughters nevus is nevus spilus, which as far as i know is the same as the speckled nevus, its very light in colour like your sons, her satellites would be v similar colour too. Im on nevus outreach on facebook, maybe your on there, might spk to you again. Thank you for sharing xxx

    ReplyDelete
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